在Banner Children's，我们理解为父母，听到颅内突变病的诊断可能是压倒性的。我们富有同情心的小儿专家团队在这里为您的孩子制定定制治疗计划，并为您和您的家人提供支持。
颅缝早闭是一个先天缺陷,影响the shape of the skull. This condition occurs when the sutures separating the skull bones close before the brain has finished developing and growing. While it’s believed environmental factors or genetics may play a part in the development of craniosynostosis, the exact cause is unknown. An abnormal head shape can occur from laying your baby in one position for too long so it’s important to talk to your pediatrician to receive an accurate diagnosis. In most cases, these conditions can fix themselves through natural brain growth and frequent newborn repositioning.
有几种不同类型的颅突变病，这些位置和缝合线受到影响。在Banner Children's，我们的儿科神经外科医生花费时间和精力来了解您孩子独特的颅骨状况来开发最佳治疗方法。
矢状突触是最常见的颅流症类型。在这种情况下，矢状缝合线是从前到后面跨过头骨顶部的开口，过早地关闭。这种类型的联合发生会导致长而狭窄的头部形状，额头上充满饱满。
当一个或两个冠状缝线是跨每只耳朵散发出的颅骨顶部的开口时，就会发生冠状突触。这会导致头部的形状宽。有两种类型的冠状突触：单核和双龙。当冠状缝合物之一过早关闭时，会发生单调性冲突。当两个冠状缝合物过早地关闭时，都会发生双色元冲突。
这种罕见类型的脱节类型仅占颅突变病例的1-3％。lambdoid的冲突是由lambdoid缝合线的过早关闭引起的，lambdoid缝合线是一个开口，从耳朵到耳朵的头骨背面横穿。lambdoid的冲突可以使宝宝头部平坦的形状在一侧。lambdoid的冲突可以很容易地与位置颅骨畸形混淆，该位置是由于宝宝优先在一侧睡觉而引起的。位置损伤不需要手术。
Metopic Synostosis（也称为三角形或Metopic缝合裂颅骨伴随颅骨）是一种更常见的突发症状况，占颅病例的20-25％。Metopic缝合线从软点到鼻子的根，如果过早融合在一起会导致额头形成三角形形状，可能会影响大脑发育。
It’s important to talk to your pediatrician if you start to see a misshapen portion of your child’s head. This does not always mean craniosynostosis as it is not unusual for a baby’s head to look a little misshapen. Sometimes this can simply mean your baby needs more frequent position changes and extra tummy time.
After your baby is born, as well as during early well-visits, your pediatrician will conduct a physical exam to look for any sign of craniosynostosis. During this exam, they will look for:
If anything abnormal is found, your pediatrician may request an imaging test, like a CT scan, to get a better understanding of the shape of your baby’s skull.
根据颅突的严重程度，可能需要也可能不需要手术，以减轻颅骨压力并允许最佳的脑生长。治疗颅突的另一种选择包括头盔疗法（颅骨矫形器），这可以帮助轻轻纠正头骨的形状。
颅突式症有两种手术选择：开放手术和内窥镜手术。这些手术是由儿科神经外科医生进行的，该神经外科医生与您的儿科塑料和颅面专家紧密合作。
Endoscopic surgery is a minimally invasive procedure that can be performed on babies 6 months and younger to open the closure. During this surgery, the pediatric neurosurgeon will create a small incision and remove the suture that is affected. Endoscopic surgery allows for a quicker recovery and a smaller incision.
Babies 6 months or older are more likely to require open surgery to reshape their skull. During this surgery, the pediatric neurosurgeon will cut open the affected suture and use plates and screws to correct the shape. This type of surgery involves a 2 to 4 day recovery in the hospital.
Helmet therapy, typically used after endoscopic surgery, is used to help reshape the skull over time. Your baby’s head is fitted with a special helmet to be worn for 23 hours a day for an average of 3 months. This therapy is not uncomfortable or painful for your baby as the helmet is made to fit your child.
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